That sucks in terms of proving disability in your country (you would be eligible already in mine but since disability here is only half of minimum wage it's not really the solution like it is where you are).
But it's really fantastic that you are able to do so much!! That's way better. You're going to be able to work from home lying down. Lots of cool ideas in here.
I think you should still apply for disability every year. Maybe find a support group or organisation for people with broken necks/spinal injuries, they might know some aspects of the process.
Good luck to you. I know what it's like to lose everything, and I really hope you are able to rebuild some kind of life for yourself.
A CPET is a cardiopulmonary exercise test. The 2 day CPET is when you get the test and then get it again 24 hours later.
People with me/cfs have different results than sedentary controls, so it's a good way of helping prove disability.
If you didn't know what ME/CFS is (myalgic encephalomyelitis) then you haven't been diagnosed with it and none of this applies to you, but I thought it was worth mentioning in case you had.
Ahhh, I'm so disappointed, I've been working on @conservative for months, and really hoping to take it on,and it looks like I missed out.
Back when I started they actually held a poll about whether my kind of nature content would be OK and it was voted yes, so I hope the new owner is pro-conserving things and doesn't purge it and turn it into just another US politics sub!
If you have been diagnosed with this I suggest you seek a second opinion.
Unfortunately there is a long and shameful history of certain doctors ignoring the physical aspects of me/cfs and trying to class it as psychosomatic or a conversion disorder.
Multiple sclerosis used to have the same problem and was seen as "hysterical paralysis".
Despite the boost in numbers, I think making the jump from reddit has been too labour intensive for LC/PASC and ME/CFS communities. It's the one thing I still visit on reddit.
It's not much, but I am beginning to put a bit of data on !mecfs@kbin.social, and longhaulers are welcome there. It also collects mastodon toots on related hashtags.
I have to disagree! I freely mod a conservative sub in my spare time.
It has definitely not been taken over by fascist snowflakes.
As proof, you are welcome to come and see for yourself: ☆ kbin conservative community ☆